I’m spending most of every day sleeping. Not by choice. I hate it. I am so tired I can’t stay awake. I get dizzy when I stand up. I sit down. Lie down. And I fall asleep. And I stay asleep for hours. It’s not a half hour doze, its five hours of deep sleep. And when I wake up, I’m still tired.
This has been going on for about ten days now. And its every day. My whole life is sleeping. I literally sleep 22 hours out of 24.
The odd thing is the rheumatoid arthritis isn’t that bad. Pain is well controlled by oxycodone. I’m guessing pain levels are lower because I’m not DOING anything.
My head aches. The icepick through the temple headache. As well as a constant frontal ache. Not intense, but unpleasant. I don’t feel it when I sleep.
I have no appetite. It’s hard to eat. I’m eating apples and oranges mostly. And pumpkin.
I feel like I have permanent gastro, nausea, diarreah, stomach pain. I’m trying to drink lots of water to stay hydrated. Even water is not easy to keep down.
My hearing is much worse. The hearing aid isn’t helping at all. My ears feel full of pressure, and the tinnitus is driving me crazy. Constant high pitched ringing. Mostly in my left ear, but the right as well sometimes.
The numb limbs have returned. On Saturday I woke up numb all down the right side. It went away.
Chest pain continues, tachycardia is reducing, but still happening several times a day.
Urinary problems have returned. It feels like no part of my body works anymore. I feel weak as a kitten, my muscles ache and my body is made of lead.
I haven’t been to gym in four weeks now I think. The most I have done was a 700 metre walk two days ago. And that wiped me out. I had to drive my kids around yesterday, about an hour driving total. That wiped me out. Today I have done nothing. I can’t do anything. I can’t think clearly. I can’t remember anything. I had a conversation with my mother, and forgot we’d already had that conversation.
My vision is blurred. Then it clears up again.
This is not living.
I need more prednisone.
All of these symptoms are symptoms of adrenal insufficiency.
Doctors won’t listen, they don’t believe me. They think i’m a big baby. There is no one to advocate for me. Explain to them that I am not a sook, that I don’t lie down easily. So they think I’m just exaggerating and attention seeking.
And they say I shouldn’t’ need that much prednisone. Fine, I get that. 7.5mg of prednisone is the replacement dose if your adrenals are not working at all. I can’t function at 8mg. That doesn’t make sense to doctors, because they are all about lab numberrs and ‘the middle of the range’. But not everyone is ‘average’. In every bell curve there are the people out on the edges. Clearly I’m one of those people. I need more thyroid replacement hormone than ‘normal’ to feel Ok. It seems reasonable to me that I need more cortisol than normal to function as well.
Either way I don’t care. I need the prednisone. I can’t live this way. I’m not living. I can’t do anything on my own. I can’t function. And yes, I am depressed. I’ve had enough of this. Friday is too far away. I don’t care.