Mixed Connective Tissue Disease and back on the doctor-go-round

blood pressure monitor
blood pressure monitor

Tomorrow it all starts again. Admittedly my arms are pretty much fine. They only hurt if if bump into something. My surgeon was right. But tomorrow the doctor-go-round starts again. 3 or more med appts a week. I can’t do it anymore. I have to cancel something.

This week is the Case Manager to come officially cancel my help package because I complained about the cleaners. (How dare I). Then there’s a physio. I have no idea what she’s going to do or who sent her. Or why. I must have forgotten. I have my review with my surgeon. Will happily report that my right hand is improved but it will take more time for my left. No guitar playing for me. And then I have the audiologist to fit my hearing aid. So nothing I can really cancel. Even tho I know that this much medical crap every week is driving me nuts.

Next week I week I have a nerve conduction test on my feet to see if tarsal tunnel is the cause of my neuropathy. Then I have the new neuro consult to consider the memory issues, the balance, the migraines, the blurred vision, the dizzy, the hearing loss, the swallowing problems and review my vestibular testing results. He’s not going to like all of that in one appointment. And then I have the pulmonologist for lung function testing. Which I want to cancel because my breathing has been much better over the last few weeks. And my chest CT was Fine. A couple of old nodules. Nothing. Do I really need another specialist? I don’t think so. I think I need a break. I think I need a holiday with my kids. Somewhere warm. Somewhere not here.

I think it’s more important that I get OFF the doctor go round. And just stop for a while. I’m tired.


I’ve set double reminders for every appointment. I’ll drive myself because if the cleaners are any indication of the transport services, they can keep it. I’ll keep my phone close so I don’t miss the reminders. And take one day at a time.




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