Yesterday was a wash, fatigue changed my plans to working on my Etsy store from the couch. No painting. So I have to paint today.
Since I got home from the hospital I’d had more severe fatigue than I’ve ever had before. At first it was the anemia, then I blamed it on the kidney problems. But now my hemoglobin is in the normal range and my kidney function is low, but its not low enough to cause symptoms. So why I have days where I can’t do anything due to sheer exhaustion, I don’t know. It’s not every day, some days are far better but I can’t find a trigger. The 20mg of prednisone always takes care of heavy RA fatigue and this is different. It’s mind and body and I can’t push through it.
Maybe my hormone testing will reveal something. I keep forgetting I have no ovaries anymore and getting the HRT right can take time.
My left side is being a pest today, heavy, painful (icy hot burning nerve pain), weak, clumsy and pins and needles. Painting will be good physio I guess :D. I have to make a start, because there will never be a ‘good’ day. And I have to start to taper down soon…I’m on borrowed time.
I also have to go to gym. Obviously I didn’t go yesterday, and I need to go at least every second day, even if its only for 15 minutes on the recumbent bike. The strength of my left side is improving quickly, and that’s because I’m working it. I’ve added one to two reps per exercise and I’m mostly doing half the reps on the left than on the right now. I think that’s great improvement for two weeks work. I don’t want to let that slide. I won’t.
And I have so much I want to write about, but the real world is so intrusive! I have about 4 or 5 hours a day right now, and that’s a lot for me. But its not a lot to get through all the things I need to do. So I better get off the computer and start painting ;).
The trigger for my fibro is weather. Cold, snow, rain, fog, humidity, dew point and barometric pressure changes all hurt. When the bodywide fibro eases up the RA slams me harder. So there are maybe 10 “good days” per year and of course those are the days I overdo it!