On Tuesday the 17th I saw my rheumatologist. The appointment was long and it was the usual. I wanted a steroid infusion to get on top of the inflammation and pain. She refused, because she believes that my inflammatory arthritis is not severe enough for a steroid infusion. We debated, but ultimately she just refused.
Her idea was to switch me to my final biological. Fail Xeljanz, on the basis that my liver enzymes are rising again, and I had been in the ER the previous Friday with severe upper GI pain.
I asked her if this would definitely be my last biological. In Australia you only get five biologicals in your lifetime. After that, you’re out of treatment options. There are ways around that, in some special cases, but she confirmed that she would not be going to pull any strings for me. She threw around the fibromyalgia word and ‘pain sensitisation syndrome’ and I just smiled and nodded.