The truth about living with Rheumatoid Arthritis

Eosinophilic Esophagitis

Eosinophilic Esophagitis diet – dairy fail

It has been almost a year since I was diagnosed with Eosinophilic Esophagitis (EoE).  A rare, but becoming more common, allergic disease which causes difficulty and pain swallowing, and inflammation and scarring of the esophagus.

I thought it was a minor thing, being that I have Mixed Connective Tissue Disease and Rheumatoid Arthritis, I figured EoE would be nothing more than an annoyance.

I was wrong.

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What is Eosinophilic Esophagitis (Oesophagitis)

Eosinophilic Esophagitis (EoE), also known as allergic esophagitis, is an inflammatory disease of the esophagus.  In Eosinophilic Esophagitis, the lining of the esophagus is infiltrated with eosinophils, a type of white blood cell that cause inflammation in the presence of allergens.  Food allergies are most often the suspected caused, but environmental allergens can also play a part.  People who have Eosinophilic Esophagitis often have other allergies as well, such as hay fever and asthma.

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Rheumatoid arthritis and losing your appetite

I don’t have an appetite.  People joke and say “I wish!” but it is not a good thing.  What it means is I find it hard to eat, I can’t enjoy food, and while food is primarily nutrition – fuel for your body, it is also a huge source of pleasure, and social interaction.  People gather for a meal to enjoy it together. If you don’t eat, people notice, and sometimes become uncomfortable.  And enjoy their own food less.  Or they don’t eat either. (‘Oh if you’re not having cake, I’ll just have coffee too…’).  It’s awkward to say the least.

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Eosinophilic Esophagitis diet – challenging gluten

Nutrition and nutritional knowledge is fast becoming essential to my life.  Having been diagnosed with Eosinophilic Esophagitis, and starting on the Eosinophilic Esophagitis diet, I am currently only able to eat fruit and vegetables and some rice and oats.  So my foodie life is pretty limited. And because I have a pretty severe case, I sometimes have attacks, even when I am eating ‘safe’ foods.  It makes no sense.

What is an attack?  My throat closes up on whatever I am trying to swallow.  It clamps down tight, and it hurts like a mofo.  Its dull pain but its strong – like having a golfball stuck in your throat.  You can’t swallow it down, and it won’t come back up.  It’s just stuck there, and causes intense chest pain. For several hours.

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Colonoscopy and Endoscopy over!

Colonoscopy over!  Going in first thing in the morning is great, no chance of running late.  I arrived at 8am.  Was prepped by 8:20am.  Sedated at 8:45am and woke up at 9:45am.  My ex-husband picked me up at 10:30am, and I was home by 11am.

Post procedure I’m feeling pretty crud.  Lots of stomach cramping –  I don’t remember that from last time.  Lots of gas, and still needing to be near the bathroom. I thought I’d be all good.  I even planned to go to gym. Hahaha…no.

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