Rheumatoid Arthritis and I’m off to see my GP for tea and sympathy – hold the tea.

I am doing it tough.  My megaflare lasted three days, and remitted to…a milder mega flare.  Pain is moderate to severe in most joints and it’s constant. I start my day by lying in bed, getting up the nerve/strength/courage to hobble to the kitchen to take oxycodone.  Flick the coffee maker.  Heatpacks in microwave. Stand. […]

Rheumatoid Arthritis awareness…fail

A good friend came over the other night, as she often does, for a glass of wine.  We’ve been close friends for many years. She is the only friend I have who knew me before I got sick.  Admittedly she didn’t know me ‘healthy’ for very long.  I have been messed-up-chronic-pain-girl longer than I was […]

orencia prefilled syringe

Rheumatoid Arthritis and six months of Orencia – update

So it’s been well and truly six months of Orencia.  My rheumatologist told me from the outset that Orencia is a slower acting biological.  She said it could easily take six months for it to have any positive effects. I promised to be patient.  And started the injections.  Orencia comes in pre-filled syringes, which I […]

Lumbar Spine Right X-Ray Marker

Rheumatoid Arthritis and prednisone and bone density and osteoporosis

I have been on a moderate dose of prednisone for around 3.5 to 4 years now.  I guess I would average 15mg per day over that time.  I have bursts where I go up to 30mg and feel pretty darn good (apart from the anxiety and the sweats and the mania) and then I try […]

uveitis and rheumatoid arthritis

Rheumatoid Arthritis, Sjogren’s Syndrome and how prednisone affects eyesight

I haven’t been blogging much lately.  I blame life.  Life gets in the way. But health reigns supreme and today was my ophthalmologist’s appointment to check how my eyes are going. I have been worried about my eye sight.  A few weeks ago I couldn’t focus my right eye.  I just could not see clearly […]

agony

Depression can sneak up and knock you down so you can’t even come up with a snappy blog post title

This morning I felt great.  Things were looking up.  I was happy.  And then suddenly everything changed….Why? I don’t know.  But suddenly my world shifted and the wind was knocked out of me.  That’s the thing about depression. You can’t predict it. Sometimes you sail through stressful situations that you’ve been dreading. And other times […]

happiness-pain

Rheumatoid Arthritis and pain – pain and happiness are not mutually exclusive

I gave up any expectation of ever having another day without pain a few years ago. This doesn’t mean I gave up.  It was actually a liberating experience.  It allowed me to stop wishing for things I can’t have, and start finding ways to make the best of what I still DO have. Once I […]

teacher

Things Rheumatoid Arthritis has taught me

RA has been a teacher.  Not my favourite way to learn, I’ll admit.  But I have learned a lot. I, like many it seems, used to be a Type A, in charge, 25 hours in a day kind of person.  I had a good career, two children, one of whom is on the Austism Spectrum.  […]

what does a rheumatoid arthritis flare feel like

What does a Rheumatoid Arthritis flare feel like?

The thing to understand about inflammatory arthritis pain is that it’s always there.  It’s not like muscle pain that happens when you use the muscle, or a broken bone that hurts when you use the limb.  Arthritis pain is constant.  There’s no comfy position to get into so that it doesn’t hurt. I have pain […]

Rheumatoid Arthritis and prednisone – there is no cure for Rheumatoid Arthritis

Prednisone is NOT a cure for Rheumatoid arthritis. There is no cure for rheumatoid arthritis.  There are treatments.  There are ways to manage the disease.  There are therapies to manage the pain.  There is no cure. Recently I’ve been posting on my personal page about the physically active things I’ve been doing.  Things like running.  […]

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