So yesterdays rheumy appointment.
She refused the methyprednisone infusion treatment. She doesn’t believe it would help me.
She has told me to up my prednisone back up to 50mg, and then taper by 12.5mg every week til 25mg, and then taper by fives until I get back to 15mg.
Because I wound up back in the ER with upper GI pain recently, she thinks it might be time to fail Xeljanz. But I only have one biological left, and so it’s a difficult decision. I told her that Xeljanz doesn’t do enough, regardless. We got into a debate, with her telling me I had told her that it had helped. I said yes, it had helped, and more than any other treatment has, but not enough to be worthwhile.