The truth about living with Rheumatoid Arthritis

Appointment with the Otolaryngologist, or Ear, Nose and Throat surgeon.

Ok, this guy could not have been less interested in me. What is it with me? I am totally disinteresting to everyone. No one wants to know.

I have had major hearing loss in my left ear, and minor hearing loss in my right ear. My right ear is still within normal limits, so the recommendation from the audiologist was for a hearing aid in my left ear, to improve my hearing and the constant tinnitus I now have.  But before I can get a hearing aid, I need to be checked out by an Otolaryngologist (ENT), because unilateral (one ear only) hearing loss is unusual, and there can be several causes for this which require treatment.

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Pain management doctors…WTH?

Ahhh pain management doctors. They’re a special breed, aren’t they?  You really have to laugh.  I did.

I saw my pain management doctor today, second consult.  His first idea was a ketamine infusion which I just could not manage logistically. I had no one to care for my teenage children while I spent 5-7 days in hospital.  So I didn’t have the procedure.

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Chronic pain and the fight for a better quality of life

Ok, life is crazy right now. And its partially my fault.  I could just give up. I could just stop chasing down treatments and trying to get help.  I could just accept that this is as good as its going to get.  Stay in bed.  Give up on life.

Except I don’t think I can do that.  I want more. I want more function. I want less pain.  I want more life.  So I’m going to have to work for it.

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Why didn’t my rheumatologist apply for Xeljanz?

That is the question. Turns out I don’t mind, because my research tells me that Xeljanz raises blood pressure in pretty much everyone.  And seeing as high blood pressure is my most pressing medical issue, it’s not the drug of choice for me.

When I had my appointment last week, after two weeks of playing telephone tag with the (typically) disinterested reception staff, she explained what happened.

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Self-absorbed health update post – MCTD and RA and BP

I’ve got lots to write about. Helpful stuff.  Informational stuff. But I’m just too sick.  There is a lot going on and this is one of those posts that’s largely for my own benefit, and my own records. To remember what happened, when, and prompt me later.

These kinds of posts allowed me to prove to my rheumatologist that I had, infact, qualified for biologicals a few years ago, so they are handy. To me at least.

So where are things at?

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