The truth about living with Rheumatoid Arthritis

Thank the gods for canned corn – Adventures in Asperger-land

Thank the gods for canned corn.

A healthy food that GamerBoy currently eats.

He generally eats four foods…when a new food arrives, an old one drops off. He has been this way since he was very small, completely unaware.  It’s something I noticed…not something he decided to do.  Right now its canned corn, boysenberry drumsticks, Heinz spaghetti and franks, and lots and lots of steak! He also drinks a lot of milk.  He’ll sometimes have a smattering of lettuce and cucumber and maybe some pink lady apples here and there. And he has a can of Solo soft drink most days. And that’s pretty much it.

I tried to get him to eat a wider variety…losing battle. Not worth the stress that it caused him, and me.

He’s healthy, he’s happy.

It has nothing to do with discipline.

Instant noodles dropped off the list when corn kernels were added, just as sausages dropped off the list when drumsticks were added, and baked beans before that.

Each food lasts several months. Some last years. Steak looks here to stay a while, and that works for me 🙂. And corn kernels are pretty healthy too I guess. And who doesnt love a drumstick???

Honey and Balsamic Dressing Recipe

Another great salad dressing.  Goes great on any salad, even a coleslaw for something a bit different.  But it’s best with the Roast Pumpkin and Spinach Salad.

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Honey and Balsamic Dressing Recipe
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Instructions
  1. Combine the honey, vinegar and oil in a screwtop jar, and shake it up to combine.
  2. If the dressing doesn't come together, microwave on HIGH or 10 seconds, so the honey melts a bit, and then shake to combine.
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Roasted Pumpkin and Spinach Salad with Honey and Balsamic Dressing

So my quest for interesting, allergy friendly food continues. I’m doing the Top 8 elimination diet, to manage my Eosinophilic Esophagitis, but the big allergens, the hard ones, the ones I miss, are gluten and dairy.

Avoiding gluten and dairy means most sauces are off limits.  I have to check all labels for allergens, because almost all processed foods or commercial sauces  contain gluten or soy.  So I am trying to make interesting dressings and sauces from basic ingredients, to try and keep my meals a little more exciting than steak and steamed vegetables every day.

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Why I never get anything done or why parenting is not so simple when you’re chronically ill

So this is morning’s disaster, or why parenting with a chronic illness isn’t as simple as all that.

The Chicklet cried sick.  Tummy trouble, gastro.  The same stuff. She spent most of the night with me, because she was too anxious to sleep alone.  All because of the possible surgery, which I have reassured her over and over is unlikely to happen.  No amount of telling her to put it out of her mind works.  She isn’t even consciously thinking about it, in fact she is consciously trying to think about other things, but she still has that revolting nauseous, churning feeling, and a strong feeling of impending doom.

Anxiety. Doncha love it?

I know how she feels, and it feels horrible. But she needs to work through the steps and stop feeding that feeling. It’s the only way.

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Feb 2017 Immunologist appointment

Yesterday I saw my Immunologist.  She’s dedicated and a really caring lady.  She’s also quite fascinated with my case, and hasn’t gotten bored or frustrated or given up yet.  Most docs do by now.

She has doubled checked everything, and I definitely do have Eosinophilic Esophagitis, which should be impossible on the doses of prednisone I have been on.  Apparently Eosinophils (a type of white blood cell high levels of which may indicate parasitic infections and allergies and much more rarely, cancer) are very sensitive to prednisone, therefore my digestive tract should not be full of them.

But they are. Can’t argue with a biopsy.  Two biopsies.

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