Eosinophilic Esophagitis and why it sux

I was diagnosed with Eosinophilic Esophagitis months ago, from a biopsy taken during my endoscopy.  I thought it was nothing serious.  But it can be. And I have a complicated case. For months I was only able to eat pureed food.  […]

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A window into life with severe autoimmune diseases, like rheumatoid arthritis and lupus

I want to give you a window into my world.  I know we all have problems, but these are my problems,  right now. I have several diseases, too many to list, and you would likely not have heard of most […]

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  • fingers

Saying goodbye to the little cat…nothing to do with RA

I just made the phone call I have been dreading for weeks. Months even. I called my vet and made my little cat’s last ever appointment with him. I’m not sure exactly how old he is.  But I think he’s […]

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Rheumatoid Arthritis and the trolls and the bullies

Before I shut this down, I have to say something about bullying. Bullying is rife in the RA community.  I’ve seen it done to others.  I’ve had it done to me.  And it hurts.  And as long as I live […]

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Rheumatoid Arthritis and my gym and why it matters so much

It’s funny how the things that can sound like the most minor of minor problems can really knock me around. Last week I was waiting on a biopsy result, one of my closest friends wasn’t speaking to me and I […]

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Did Rheumatoid Arthritis end my marriage? Nope…I did.

‘You had a perfectly good husband, you should have held onto him’. An actual remark from one of my friends who didn’t want to listen to my problems. Perfectly good husband. Yes, true. Perfectly good husband, who was in love […]

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Post Endometrial Ablation and what the biopsy showed

My OBGYN just called.   She spoke to me after the endometrial ablation, while I was still coming out of the anesthetic. I was awake and alert, and she talked me through what she’d found. The ablation went well, but she […]

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  • Fingers, my cat

Living with a time bomb. Or ‘how to develop a high pain tolerance’

  I used to live with a time bomb.  At semi regular intervals he used to go off. And it was ugly. You won’t understand why I stayed.  But it’s not difficult to understand. I had nowhere else to go.  […]

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Adenomyosis, PMDD, PCOS and treatment options…

My new OBGYN is brilliant.  First consult today and she spent a whole hour with me ‘getting to know you’ as she put it.  Working her way through my very complicated medical history, and specifically complicated gynecological history.  Checking facts […]

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Why my psychologist is amazing

My psychologist is amazing. He is a wonderful, highly trained and empathic professional.  He knows me.  He proved that unequivocally today.  And I could not get through all of this stuff without him.  No way. We are like close friends. […]

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