My son has Asperger’s Syndrome. Another invisible illness.

This is not the blog post I was planning to write this morning, but it’s what took over. My son has Asperger’s Syndrome.  This morning he had one of his classic meltdowns because he didn’t want to go to school.  Yesterday he had his Physical Education elective. He does gym.  He and the other kids […]

Starting a new challenge – photography with Rheumatoid Arthritis calling the shots

It’s Saturday. I have been wanting to blog about my new challenge -  my photography course – all week.  But I haven’t been able to. Why?  Because my pain levels and fatigue levels have been too high.  I don’t have the energy. I don’t have the brain power. So now I will try. Firstly, I […]

all meds

Rheumatoid arthritis – do you drink alcohol on methotrexate and arava?

I have a confession to make.  I drink. This is probably more of a ‘confession’ for me than for most, for two reasons. One, I take medications that you should not drink alcohol with.  Namely methotrexate and arava. And two, one of the reasons I separated from my husband was because of his heavy drinking.  […]

Rheumatologist review and update on Orencia and the fear of Multiple Sclerosis

So it’s over 7 months on Orencia and its time for my review for medicare approval.  I have had a few good days, but a lot of megaflares.  I always have to think hard before I got to my rheumatologist, to decide what I want to do.  She is a great rheumy, she’ll tell me […]

Laptop

Rheumatoid Arthritis and what was, what is and what will be

The last 18 months have been amongst the hardest of my life.  In many ways, I was stuck.  Stuck by my disease.  Stuck by my inability to work.  Stuck by my own attitudes at times.  Depression crept up regularly, and I would fight it back down. Only to feel it lapping against my feet, waiting […]

agony

Depression can sneak up and knock you down so you can’t even come up with a snappy blog post title

This morning I felt great.  Things were looking up.  I was happy.  And then suddenly everything changed….Why? I don’t know.  But suddenly my world shifted and the wind was knocked out of me.  That’s the thing about depression. You can’t predict it. Sometimes you sail through stressful situations that you’ve been dreading. And other times […]

happiness-pain

Rheumatoid Arthritis and pain – pain and happiness are not mutually exclusive

I gave up any expectation of ever having another day without pain a few years ago. This doesn’t mean I gave up.  It was actually a liberating experience.  It allowed me to stop wishing for things I can’t have, and start finding ways to make the best of what I still DO have. Once I […]

teacher

Things Rheumatoid Arthritis has taught me

RA has been a teacher.  Not my favourite way to learn, I’ll admit.  But I have learned a lot. I, like many it seems, used to be a Type A, in charge, 25 hours in a day kind of person.  I had a good career, two children, one of whom is on the Austism Spectrum.  […]

what does a rheumatoid arthritis flare feel like

What does a Rheumatoid Arthritis flare feel like?

The thing to understand about inflammatory arthritis pain is that it’s always there.  It’s not like muscle pain that happens when you use the muscle, or a broken bone that hurts when you use the limb.  Arthritis pain is constant.  There’s no comfy position to get into so that it doesn’t hurt. I have pain […]

Rheumatoid Arthritis and prednisone – there is no cure for Rheumatoid Arthritis

Prednisone is NOT a cure for Rheumatoid arthritis. There is no cure for rheumatoid arthritis.  There are treatments.  There are ways to manage the disease.  There are therapies to manage the pain.  There is no cure. Recently I’ve been posting on my personal page about the physically active things I’ve been doing.  Things like running.  […]

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