what does a rheumatoid arthritis flare feel like

Rheumatoid Arthritis and Reiki

I had my first ever Reiki session today. I had no idea what Reiki was all about, but I had heard the term.  As much as I knew is that it’s an alternative healing therapy.  Nothing more.  And I purposefully didn’t research, or google, or ask anyone about Reiki and what they thought.  I wanted [...]

simponi

Long standing Rheumatoid arthritis and remission…is it even possible?

Sometimes I lose hope.  Sometimes I don’t see an end to the pain.  Sometimes the road to a drug, or a combination of drugs, that can provide some relief – let alone remission – seems endless.  I have walked it already, a few times over. I have recycled the same drugs, sometimes in different combinations, [...]

Rheumatoid arthritis or ankylosing spondylitis or mixed connective tissue disease or just plain over it

I saw my rheumatologist yesterday.  I do love my rheumy. She is caring and communicative.  She treats me as an equal.  She treats me as a fellow expert, just with a different set of qualifications. This is how all doctor/patient relationships should be when dealing with a chronic condition.  Mutual respect for eachother’s knowledge and [...]

humira

Rheumatoid arthritis and failing humira

Normally I would be injecting Humira tonight.  But no more.  I have done my 12 weeks, and have felt no benefit for at least the last six of those.  And the side effects, particularly the depression and anxiety, are not worth it. In truth, I can’t believe I managed to stick it out this long.  [...]

fruitnveg_cropped

Rheumatoid arthritis doesn’t go away for special occasions

Yesterday was my son’s birthday.  I spent a large part of the day ‘resting’.  Watching.  Following behind. Not really taking part. Rheumatoid Arthritis doesn’t just go away when I want it to. No matter how much I begged the powers that be the previous night to please, please let me have a good day for [...]

agony

Depression can sneak up and knock you down so you can’t even come up with a snappy blog post title

This morning I felt great.  Things were looking up.  I was happy.  And then suddenly everything changed….Why? I don’t know.  But suddenly my world shifted and the wind was knocked out of me.  That’s the thing about depression. You can’t predict it. Sometimes you sail through stressful situations that you’ve been dreading. And other times [...]

happiness-pain

Rheumatoid Arthritis and pain – pain and happiness are not mutually exclusive

I gave up any expectation of ever having another day without pain a few years ago. This doesn’t mean I gave up.  It was actually a liberating experience.  It allowed me to stop wishing for things I can’t have, and start finding ways to make the best of what I still DO have. Once I [...]

teacher

Things Rheumatoid Arthritis has taught me

RA has been a teacher.  Not my favourite way to learn, I’ll admit.  But I have learned a lot. I, like many it seems, used to be a Type A, in charge, 25 hours in a day kind of person.  I had a good career, two children, one of whom is on the Austism Spectrum.  [...]

what does a rheumatoid arthritis flare feel like

What does a Rheumatoid Arthritis flare feel like?

The thing to understand about inflammatory arthritis pain is that it’s always there.  It’s not like muscle pain that happens when you use the muscle, or a broken bone that hurts when you use the limb.  Arthritis pain is constant.  There’s no comfy position to get into so that it doesn’t hurt. I have pain [...]

Rheumatoid Arthritis and prednisone – there is no cure for Rheumatoid Arthritis

Prednisone is NOT a cure for Rheumatoid arthritis. There is no cure for rheumatoid arthritis.  There are treatments.  There are ways to manage the disease.  There are therapies to manage the pain.  There is no cure. Recently I’ve been posting on my personal page about the physically active things I’ve been doing.  Things like running.  [...]

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